Today is the anniversary of the trauma that led to my eventual Crohn’s diagnosis. One year. It feels like three. Maybe that’s why I’m in a funk. My body remembers. 💔
Gosh. So much has happened since I last posted. I was super sick for a few months there. Like suuuper sick. Christmas break was me on the recliner, drugged up with a heating pad. Even getting out of bed felt like a feat. Not my best for sure. I eventually called my doc about it, and he put me back on Prednisone. He figured that plus the new Humira injections would kick the Crohn’s to the curb. At one point, I started to hope he was right. My stools started to be formed (there were plops, people!). He said that meant the Humira was working. So he had me taper off the Prednisone. This could be the magic cocktail we were looking for! It wasn’t. Since being off Prednisone, I have gotten progressively worse. I am now back to pooping straight water (really foul water) and hurting and feeling achy and awful. The doc ordered a blood test and a stool sample (fairly routine, unfortunately) and met with me yesterday. Things don’t look good. My Calprotectin levels are still really high, though my...
My doctor didn’t come talk to me after my colonoscopy, and the report just listed moderate to severe “colitis” (which means general inflammation), so I was pretty clueless as to his thoughts and findings. Thankfully I had a follow up appointment just a few days out (Monday, Dec. 6). Pathology results (twelve biopsies again, ow) had come back along with blood test results and stool sample results, so it promised to be a pretty comprehensive appointment. Turns out it was. I have Crohn’s disease. :( I have damage/inflammation/ulcers in my stomach, my small intestine, and all through my large intestine (minus my rectum, again, thankfully). My pathology results plus the physical manifestations they could see (cobblestoning etc) led him to diagnose me officially and confidently with Crohn’s. Somehow it feels scarier and more serious now, but I have to remember that my body is not going to suddenly change just because they figured out what it is called. I do, however, have a whole new me...
Oh man. I’ve been sooooo much better the past few days. SO much better than I was for months. I know it’s all thanks to the Prednisone, but I don’t care. It’s been an enormous relief and has offered some desperately needed respite. I was able to not only participate in but also help pull off Cora’s baptism. I was able to play card games with company. I went to a doctor’s appointment (kidney doc) in Safford today - AND to lunch - with no awful consequences! This is so big, you have no idea. The only weird thing is that (tmi) my diarrhea has been black. Like black black. And like full of sediment. Sort of sandy. I randomly thought to Google it (purely curious at that point), and I learned that this is typically indicative of an active bleed higher up in the digestive tract - maybe the esophagus/stomach/small intestine. They compared it to ground coffee grounds, and I was like, “Yes!” That described it perfectly - well, if coffee grounds are black as night! So, naturally,...
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