Today is the anniversary of the trauma that led to my eventual Crohn’s diagnosis. One year. It feels like three. Maybe that’s why I’m in a funk. My body remembers. 💔
Oh man. I’ve been sooooo much better the past few days. SO much better than I was for months. I know it’s all thanks to the Prednisone, but I don’t care. It’s been an enormous relief and has offered some desperately needed respite. I was able to not only participate in but also help pull off Cora’s baptism. I was able to play card games with company. I went to a doctor’s appointment (kidney doc) in Safford today - AND to lunch - with no awful consequences! This is so big, you have no idea. The only weird thing is that (tmi) my diarrhea has been black. Like black black. And like full of sediment. Sort of sandy. I randomly thought to Google it (purely curious at that point), and I learned that this is typically indicative of an active bleed higher up in the digestive tract - maybe the esophagus/stomach/small intestine. They compared it to ground coffee grounds, and I was like, “Yes!” That described it perfectly - well, if coffee grounds are black as night! So, naturally,...
Saw my doctor yesterday afternoon. He said he needed to see inside my colon. So I have a procedure this morning. Third time’s a charm? I wonder if I will be getting these every three months forever. This time is not a full colonoscopy. It is a flex sig. And I don’t have an upper scope like I had before. So the prep was easier, and hopefully it will be less painful post biopsies. I just hope he can see enough to understand what’s going on. Fingers crossed. I’m not super sure what he thinks he’s going to find that he didn’t see it before. I asked him about it a few times and he didn’t give me a very clear answer. I don’t know if it’s a language barrier or if he just doesn’t like to give him too much information. Or maybe he just doesn’t know. He’s pretty baffled by the fact that my body is not responding to the Humira. He said maybe it isn’t Crohn’s after all because Crohn’s should be responding. But he was so confident diagnosing it last time. I am super frustrated to be back at the dia...
Gosh. So much has happened since I last posted. I was super sick for a few months there. Like suuuper sick. Christmas break was me on the recliner, drugged up with a heating pad. Even getting out of bed felt like a feat. Not my best for sure. I eventually called my doc about it, and he put me back on Prednisone. He figured that plus the new Humira injections would kick the Crohn’s to the curb. At one point, I started to hope he was right. My stools started to be formed (there were plops, people!). He said that meant the Humira was working. So he had me taper off the Prednisone. This could be the magic cocktail we were looking for! It wasn’t. Since being off Prednisone, I have gotten progressively worse. I am now back to pooping straight water (really foul water) and hurting and feeling achy and awful. The doc ordered a blood test and a stool sample (fairly routine, unfortunately) and met with me yesterday. Things don’t look good. My Calprotectin levels are still really high, though my...
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