Well, damn.

So the doc had me adjust down the meds I was taking (reducing the Prednisone and doing away with Sucralfate) at my appointment last Monday. I was so excited. Maybe I didn’t have actual Ulcerative Colitis but had just damaged my colon due to an allergic reaction. That was a much easier fix! 

But everything started to fall apart as of even that evening. It got worse and worse until I was crying in a public bathroom this morning (yay for being that girl). Lots of pain, lots of blood, lots of urgency and frequency. I called my GI’s office and spoke to his nurse. She said she’d update him and see what he said.

Dr. Habib just called.

He wants me to increase the Prednisone back up to 40mg. And start taking Sucralfate again. And avoid all dairy.

If things do not improve by Tuesday, he wants me to come in. If they do improve, he wants to see me at the end of the month.

He said that he doesn’t know if the NSAIDs damaged my colon or if they just triggered an underlying Ulcerative Colitis condition. So right now he is treating me like I have Ulcerative Colitis because my body is acting like I do. And we will see. He said I likely need to go in for another scope so that he can see what’s going on and why it is getting worse not better. But we will get there in a month.

I have never felt so happy to be taking tons of pills again. But I felt really loved that he took the time to personally call me and not just relay a message through his nurse. And he answered my questions as well as I could ask them. We shall see.

Comments

  1. juli109September 8, 2021 at 10:49 AM

    Wow Becca! I'm so sorry you've been having these issues. Thank goodness for your mom.
    I've had trouble with my innards for a while now, but it was IBS. I have a friend with Crohn's and I know it isn't fun.
    Becca, if there is one thing that's true, it's that there's no dignity in getting older.
    For Pete's sake, I sound like my grandma's friends that would "talk shop" about their latest medical concern. You are too young for this though!
    As my mom would say, "Stop it!!"
    I'll be sending healing energy to you and your family while you sort things out.
    Ask for help when you need it. I know we are extremely socially distanced from each other, but Mar and I have a lot of experience in this area and are here to listen if needed.
    We care about you and hope things start to look up soon. ❤️

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